Born Primitive is proud to donate 100% of profits from the Bear Boy shirt to RUN DIPG. Please see below for more info on Bear Boy’s story and what RUN DIPG is doing in the fight against this rare disease.
Bear Boy’s Story
On July 1st, 2021, four-year-old Nolan “Bear Boy” Moran, was diagnosed with diffuse intrinsic pontine glioma (DIPG)—an inoperable, terminal brain tumor that primarily attacks children. The diagnosis is effectively a death sentence for any child dealt this terrible fate, with no effective treatment options. Nolan’s parents left the hospital that day with a letter stating that Nolan had 9 to 12 months left to live, and to go home and make memories with him.
Through their devastation, they searched for any glimmer of hope, any chance at a fair fight. But every call, every connection to some of the world’s most renowned children’s cancer facilities, ended the same way: there is nothing anyone can do, go make memories with Nolan.
Like every other child with this diagnosis, Nolan immediately started a course of daily radiation treatments. However, his parents were reminded that this treatment offered no hope of a cure. It would only slow the tumor’s growth to give Nolan a month or two longer with them. At some point, the tumor would start to grow again, and Nolan’s health would rapidly decline. Again, they were told: go make memories while Nolan is still physically able.
And make memories they did. Over the next seven months, Nolan’s parents and his older brother and sister, Kellen and Norah, and his baby brother, Will, filled each of Nolan’s days with love, laughter, beauty, and joy.
But by February, just after his fifth birthday, an MRI confirmed what his parents desperately feared— Nolan’s tumor was once again progressing.
As the disease began to steal his physical capabilities one by one, Nolan’s bravery, tenacity, and sense of humor remained steadfast. Nolan fought fiercely and adapted around every move the tumor made. He learned to communicate with his family just through his eyes, or the movement of a single finger. His mom and dad, in tune with every cell of Nolan’s body, learned to read his emotions through the slight raise of his eyebrows or the shift of his weight in their arms.
However, the fight was never fair. On April 12th, 2022, Nolan passed away, wrapped in his parents’ arms and surrounded by his brothers and sister, secure in their love and protection.
Nolan’s family is now picking up his fight against DIPG where he left off, to fight just as he fought: with tenacity and fierceness, bravery and humor. They are fighting so that other children have more of a fair fight and for a future where no family ever hears the words “go home and make memories” about their little son or daughter.
What is RUN DIPG
Nolan’s family has chosen to partner with RUN DIPG to continue his fight. RUN DIPG is a charity and research facility started by Dr Phoebe Hindley (Dun) and Biomedical Scientist, Associate Professor Matt Dun – who lost their four-year-old daughter, Josephine Laura Dun, to DIPG in 2018. Nolan’s parents immediately connected to the personal vendetta the Dun’s share with them against DIPG, and to the amazing work they have done to further treatment options for children diagnosed with this deadliest childhood cancer. RUN DIPG has become a worldwide leader and advocate for the timely and innovative development of anti-DIPG therapies, and improvement to current standard-of-care management. To learn more, please visit https://rundipg.org/.
How to join the Fight
Please join us in Philadelphia on September 17th at 10 AM ET for the Memorial Walkathon. A purchase of the Bear Boy Commemorative Tee will act as your registration for the event. The 5K walk will begin at the Hollenback Center (3000 South St.).